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Greetings from Unite 2 Fight Paralysis!
 Dear Friends-
Time has flown by, and it's nearly time for the
Working 2 Walk Symposium and Rally
in Washington DC! With the firm belief that preparation can ease
worries, U2FP has been busy compiling the information you need for a
safe, stress-free trip. The W2W
Area Maps
page has the details you'll need to get around DC and especially
Capitol Hill. Maps of the
Metro system,
the
Rally location,
even
accessible entrances to the Capitol buildings!
Our
Transportation Page
offers all the facts we could glean to simplify your DC adventure.
Staying in Crystal City? This
Airport to Crystal City guide
should get you from the airport to your room. If you're having qualms
about travelling on the Metro, see our step-by-step
guide to Metro travel,
and relax!
Crystal City to Symposium by Metro,
driving directions to the Symposium,
parking at the Symposium,
it's all here!
We'd like to take this opportunity to thank the friends and
sponsors we've had the pleasure of working with these past months. It
seems we always rely on the kindnesses of our friends. They never let
us down.
We're excited, and we're looking forward to seeing you in DC. We
anticipate meeting new friends and reuniting with old ones, as
together we Go Forward. We're Working 2 Walk!
Sincerely,
Your friends at
Unite 2 Fight Paralysis
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The MOST Important Thing To Do In DC!
Visit your legislators about the Christopher Reeve Paralysis Act! It's not too late to get an appointment!
When you visit your legislators to talk about the Christopher
Reeve Paralysis Act, you do more than discuss a piece of legislation.
You put a face on the issue! You're no longer an anonymous wheelchair
user, glanced at and then forgotten. You're not the invisible family
member that copes silently with the daily issues of paralysis. You
become a real person, with real dreams and desires.
To maximize this effect, remember to take your camera for a shot
with your legislators. You might even staple a picture of yourself to
a short bio and put it in your lobbying packet. Every time they look
for that CRPA info, they'll be greeted with your face, your
reality-and your VOTE!
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Legislative Appointments-Start to Finish!
 Enter your zipcode in the white box
here, then
click on the pictures to find your legislator's DC office phone
number. Ask for the Scheduler. If you go to voicemail the script
below will work; just remember to leave thorough contact information.
"Hello, my name is _____. I'm a constituent and I would like to
make an appointment to speak with (Representative X or Senator X)
about the Christopher Reeve Paralysis Act and why it is important to
me. I will be in town on May 2 and would like to have a few minutes
after 1:00 to discuss this with the (Representative or Senator)." If
you are told that the Representative or Senator is not available on
that day, ask to make an appointment with the Legislative Health
Aide. Such meetings with Legislative Aides can be very valuable; the
aides often influence how a legislator votes.
Please update
Betheny on all
appointments scheduled!
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W2W Symposium at Ronald Reagan Building
 The Working 2 Walk Symposium is being hosted April 30 and May 1 at
the
Ronald Reagan International Trade Center.
This ADA-compliant building is located 2 blocks from the White House
at 1300 Pennsylvania Avenue (full driving directions
here). 3 entrances
access the onsite underground parking for 2,000 cars (detailed
area map with garage entrances)
. Federal Triangle Metro Station is connected to the Reagan Building
by a covered passageway.
NOTE: Photo ID required to enter Reagan Building!
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Rally for the Christopher Reeve Paralysis Act!
Christopher Reeve fought a long battle for legislation to enhance
research into the care and cure of people stricken with paralysis. On
May 2, we again seize the opportunity to advance a bill that supports
and expands paralysis research, rehabilitation, and quality of life!
Even if you're not going to DC, you can
easily email your members of Congress
and ask them to co-sponsor the Christopher Reeve Paralysis Act.
The CRPA is designed to benefit nearly all people that cope with
paralysis from dysfunction of the central nervous system. This
brief synopsis
will help you understand how. More in-depth knowledge is found in the
full text of the CRPA.
The
CRPA Cosponsor Status
is updated daily to inform us of how the bill is faring!
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W2W Rally: May 2, Upper Senate Park!
The W2W Rally for passage of the Christopher Reeve Paralysis Act will
be held May 2 at 11 a.m. in Upper Senate Park. Located at the
intersection of Delaware and Constitution, Upper Senate Park is
between Union Station and the Capitol, just across Delaware from the
Russell Senate Building. Detailed Rally Day map with written
instructions
here.
Featuring exciting speakers and hosted by Susan Sarandon, rallying
is a sure-fire way to build up steam for those legislative visits!
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 Parking on Capitol Hill has always been a problem; today's heightened
security has magnified this issue. We must stress the folly of
driving a car on Capitol Hill! If you feel you must drive, the most
reliable place to park your vehicle is the Union Station Parking
Garage, at 30 Massachusetts Ave. NE, behind Union Station. With 1,000
spaces currently available, the Garage is multi-tiered and has
elevator, escalator and stairwells. Parking is available 24/7. Only
one entrance to the garage is currently open. It is located at
Massachusetts Avenue NE at Columbus Circle
Note: Maximum height for passenger vehicles is 8 feet!
Call 202-898-1950 for rates and driving directions.
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Post-Rally Lunch at the Longworth!
 Lobbyists with legislator's appointments can take the quick 1/2 mile
trip to the south side of the Hill for a quick and casual lunch. Free
vouchers will be provided for lunch at the cafeteria in the Longworth
House Office Building. (see
detailed W2W Rally Day map)
Staff from the Christopher Reeve Foundation will be available to
answer questions.
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Can't Attend W2W? |
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Join the W2W Wall of Hope!
For anyone who cannot attend the Rally/Symposium but would like
to be there in spirit, there is an option. Send a photo with a brief
statement of your support to
pmdello@yahoo.com. Include
your date of injury, injury level, name and hometown. Caregivers and
anyone interested in paying tribute to the Reeve legacy may also
participate. The photos together with statements will be displayed at
the Symposium for attendees to view as a Wall of Hope.
"Hope is the companion of power, and mother of success; for who so hopes strongly has within him the gift of miracles."--Samuel Smiles
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Working 2 Walk Schedule |
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Sunday, April 30
8:30-5:00
Science Symposium
Ronald Reagan International
Trade Center
Monday, May 1
8:30-1:00
Advocacy Morning
Ronald Reagan International
Trade Center
Free Afternoon
Sightsee
Legislative Visits
Kennedy Krieger Institute
Open House
Tuesday, May 2
11:00-12:30
Rally on Capitol Hill
Afternoon
Lunch for Lobbyists
Legislative Visits
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Sunday Science Symposium Speakers! |
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Marie T. Filbin, Ph.D
Dr. Jane Roskams
Hans Keirstead, PhD
Oswald Steward, PhD
Susan Harkema, PhD
Andrea Behrman, PhD, PT,
Steve Williams, MD,
John W. McDonald, MD, PhD,
Naomi Kleitman, PhD
ProfessirX
Advocate Testimonies:
Josh Basile
Joseph Briseno
Kelly Giannatasio
Danny Heumann
Marilyn Smith
Daniel P. Lammertse, MD
James D. Guest, MD, PhD, FACS,
Andrew R. Blight, PhD
Wise Young, PhD, MD
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Monday: Advocacy Day Speakers! |
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Susan Maus
Chris Chappell
Adam Gluck
Michael Manganiello
Tricia Brooks
Rachel Hammerman
Kris Gulden
Bob Mulcahy
Don Reed
Carl Richards
Joe White
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Tuesday Rally Speakers! |
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Susan Sarandon
Betheny Winkler
Kathy Lewis
Brooke Ellison
Noah Smith
Dr. Wise Young
Jesse Billauer
ProfessirX
Congressional Supporters
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W2W sponsors! |
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Thanks for your generosity!
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