June 21, 2006
In This Issue:
A Caring Model for Nursing Home Environments
An article in the June 2006 issue of the Journal of Gerontological Nursing analyzes the results of focus groups conducted with long-term care staff to develop a caring model for nursing home environments.

In "Staff Perceptions of Caring: The Importance of a Supportive Environment", author Suzanne Sikma discusses findings from focus groups with nursing assistants and other staff at two long-term care facilities in the Pacific Northwest. "Nursing homes are expected to provide the desirable commodity of caring to residents," Sikma notes. "Yet often staff employed to provide this caring service complain that the organization itself leaves them feeling used, abused, and burned-out rather than cared about. It is essential to identify strategies to develop nursing homes as caring places that minimize caregiver stress and optimize positive connections, capacity, and commitment of the caregiving staff."

Participants identified five themes - valuing individuals and the work, belonging, having the knowledge necessary to understand a situation and its context, acting together, and promoting quality - as critical components of feeling valued. In addition, they identified three characteristics of supportive organizations:
- Providing resources to do the work;
- Creating an environment of trusting support; and
- Ensuring that the channels of communication - both vertical and horizontal - remain open.

Sikma says her Model of Caring in the Organizational Environment, which was based on her findings, can be used "to assess and improve the caring environment of nursing homes as well as to develop caring managers and staff."
Participants Give Washington Home Care Authority Programs High Marks
The Home Care Quality Authority (HCQA), a Washington-based agency that supports people who need long-term in-home care, recently evaluated the results of two of its support programs for home care workers: a peer mentor program and a professional development program. The preliminary findings were positive for both, although some changes and more study were recommended to help ensure their effectiveness.

Click here for the rest of the story.
New Association Formed for Assisted Living Nurses
The National Association Directors of Nursing Administration /Long Term Care (NADONA/LTC) has formed a new professional association for registered nurses and licensed practical nurses in assisted living. Dee McGinnis, RN, BSN, is chairperson of the National Assisted Living Nurses Association (NALNA). Membership had already reached 700 by the organization's official launch.
Health Care Committee Calls for Coverage for All Americans
The Citizens' Health Care Working Group, a committee established by Congress in 2003 to address health care reform, has issued an interim report stating that the federal government should ensure that all U.S. residents have basic health insurance that is "portable and independent of health status, working status, age (and) income." The report recommends that funds to cover the cost of universal health insurance come from sources such as enrollee contributions, income taxes, "sin taxes," and payroll taxes. The committee will present its final report to President Bush and Congress this fall, after which the president will submit a response and five congressional committees will conduct hearings on the issue.
NIA Booklets Explain Alzheimer's in Plain English
Two free booklets from National Institute on Aging (NIA) help people with limited literacy skills learn about Alzheimer's disease and memory loss. Plain language, stories, photographs, and other features help readers understand the content. Understanding Memory Loss covers topics such as the difference between mild forgetfulness and serious memory problems, causes of memory problems and how they can be treated, and what a person should do when worried about memory. Understanding Alzheimer's Disease covers signs of the disease, the importance of seeing a doctor early, available treatments, and help for caregivers. Click here or call 1-800-438-4380 to order copies (bulk orders welcome).
Governors Call for New LTC Funding Mechanisms
The National Governors Association's (NGA) Medicaid working group is calling on the federal government to make a number of changes to the long-term care services and payment systems. A June 12 letter to the Medicaid Commission builds on earlier recommendations, many of which were enacted in the Deficit Reduction Act of 2005. The letter calls for finding other ways of funding long-term care outside the Medicaid program, including expanding incentives for purchasing long-term care insurance and increasing coordination between Medicare and Medicaid.
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Report to Congress Urges Action to Support and Grow DSP Workforce
Other Factors May Affect Nursing Home Staffing More than State Standards
NADCWOC Conference Focuses on Emergency Management
Direct-Care Wages, Benefits Obstacle to Rebalancing LTC Services in Rhode Island...
... and California
Help Wanted
Family Caregivers Unprepared for Loss of Home Health Assistance
In Search of Exceptional Caregivers
Care for the Caregivers
Report to Congress Urges Action to Support and Grow DSP Workforce
"One of the challenges facing the U.S. in the 21st century will be to ensure that individuals of all ages receive, throughout their lives, the health and social support services they need to live with dignity as fully included members of our society," notes a report to Congress from the U.S. Department of Health and Human Services (HHS). "For the estimated 4.3 million Americans of all ages with intellectual disabilities and/or developmental disabilities (ID/DD) living in residential settings, their own homes or with members of their families, ensuring access to and quality of direct support professionals (DSPs) is key."

Ensuring an adequate supply of DSPs, according to The Supply of Direct Support Professionals Serving Individuals with Intellectual Disabilities and Other Developmental Disabilities: Report to Congress, means improving retention as well as recruitment. And that means improving cooperation between federal, state, and local governments; education and training institutions; workforce investment systems; faith-based organizations; service provider organizations; and DSPs themselves to ensure that DSP positions offer "sufficient opportunity and respect" to be considered "a viable career decision."

Click here for the rest of the story.
Other Factors May Affect Nursing Home Staffing More than State Standards
Establishing minimum staffing ratios for nursing homes does not necessarily increase staffing levels, according to an article in the February issue of the Gerontologist.

This anomaly may be partly explained by the low staffing requirements in many states, which some facilities treat as ceilings rather than floors. A high staffing standard may increase facility staffing, the researchers found, but a low standard may have a negative effect, since "some facilities may treat staffing standard minimums as if they were maximums, and lower their staffing accordingly." But it also reflects the fact that many factors other than government standards affect nursing home staffing levels.

Click here for the rest of the story.
NADCWOC Conference Focuses on Emergency Management
"Saving Lives and Serving the Community" was the theme of the second annual National Association for Direct Care Workers of Color conference and awards luncheon. Direct-care workers from Indiana, Michigan, and across the country converged in South Bend, Indiana, on June 10 to celebrate National Nursing Assistant Week and learn about how to respond more effectively to large-scale disasters or emergencies like last year's Hurricane Katrina. Attendees and guest speakers also discussed the shortage of affordable health insurance for direct-care workers and the racial barriers that workers of color often face on the job.

After a panel discussion moderated by City Council member Charlotte Pfeiffer, attendees participated in break-out sessions designed to help direct-care workers think proactively when working either with supervisors and emergency responders or alone in the aftermath of a large-scale emergency or disaster. Attendees developed a list of best practices, which they agreed that direct-care workers in all settings should learn and practice. They plan to form a national leadership team and to invite people with expertise in training to join them in teaching others what they have learned.

The luncheon and awards ceremony was hosted by Jeni Gipson, the co-founder of National Nursing Assistant Week and president of the National Network of Career Nursing Assistants.

The South Bend Tribune covered the conference in its June 11 issue.
Direct-Care Wages, Benefits Obstacle to Rebalancing LTC Services in Rhode Island...
A study of community-based long-term care services in Rhode Island found a shortage of qualified direct-care workers to be an obstacle to "rebalancing" the state's long-term care offerings from nursing home care to community-based services.

The problem, says Community-Based Long-Term Care Services in Rhode Island, is due largely to the differential in wages and benefits between home care and nursing homes and other institutional settings. "Overall, hourly wages and employee benefits decline on the provider continuum as it moves from institutional care toward community care and home care," the authors report, with CNAs in hospitals earning the most and homemakers, chore workers, and other home-based direct-care workers earning the least. Tables illustrate average wages by setting in Rhode Island and five neighboring states.

The same decline is seen in benefits, with the institutional providers contributing more to employee health insurance and providing more paid vacation and sick leave. Other competitive disadvantages for home care staff include unpaid time spend traveling between clients, unpredictable hours, and the difficulty of working full-time if desired.

The report, which was prepared for the Rhode Island Department of Human Services, also reviewed service rates and rate methodologies for four types of community-based services and recommended ways of restructuring state funding to support assisted living, home care, respite care, and adult day care.
... and California
"California's network of person-centered services for people with developmental disabilities is experiencing a staffing crisis that affects the quality and availability of person-centered services," says Quality Services and Quality Jobs for Supporting Californians with Developmental Disabilities, a report by Carol Zabin of the University of California at Berkeley Center for Labor Research and Education. "Low wages, inadequate access to health insurance, and lack of training and career opportunities all lead to high rates of turnover and longstanding vacancies."

The state's shift from serving people with developmental disabilities mainly through large public institutions to creating a community-based system committed to person-centered services, the report notes, has had negative consequences for direct-support workers.

Click here for the rest of the story.
Help Wanted
The Oregon Center for Applied Science is looking for nursing assistants, home health aides, and people studying to become either nursing assistants or home health aides to help test a new online training program for professional caregivers who deal with residents with aggressive behaviors.

Participants will be asked to provide feedback and opinions on two online surveys. In exchange for their time, they will be compensated $50. Activities will take up to 90 minutes and must be done from a computer.

Click here to read more about this federally funded test - or to sign up as a participant.
Family Caregivers Unprepared for Loss of Home Health Assistance
A study of family caregivers of stroke and brain injury patients finds they are poorly prepared for the ending of short-term home care services.

For "This Case Is Closed: Family Caregivers and the Termination of Home Health Care Services for Stroke Patients," researchers at the United Hospital Fund followed a sample of 99 unpaid family caregivers in New York. The subjects were taking care of stroke or brain injury patients after they were discharged from a hospital or short-term nursing home stay.

While most of the patients were eligible for some services from home care agencies, the family caregivers shouldered three-quarters of the care responsibilities even when agency services were being delivered. Between a third and a half of the caregivers reported being inadequately prepared to be without support from home health aides, nurses, and therapists when the services ended, which was typically after six or seven weeks.

Click here for the rest of the story.
In Search of Exceptional Caregivers
The Wisconsin Association of Area Agencies on Aging and the Wisconsin Long Term Care Workforce Alliance are seeking nominations for this year's Spotlight award. Nominations are due by July 15. Four Wisconsin caregivers will be awarded the Spotlight award, as well a $250 cash award. To be eligible, nominees must be direct caregivers (CNAs, resident assistants, home health or home care aides, personal care workers, rehabilitation aides, adult day care workers, medication aides, etc.).

Click here for information on how to submit a nomination.
Care for the Caregivers
Two recent stories illustrate the grave need for affordable child care for direct-care workers struggling to balance their obligation to the people they assist - and their need to earn a living - with their own families' needs.

On the personal side, "One Mother's Struggle," an article in the May 24 issue of the Smoky Mountain News, tells the heartbreaking story of a CNA whose son died of heat exhaustion in the car where she left him while working a double shift, since she could not afford child care.

From the policy perspective, Women's Work Supports, Job Retention, and Job Mobility: Child Care and Employer-Provided Health Insurance Help Women Stay on Jobs, a research brief published by the Institute for Women's Policy Research, looks at factors that help or hinder job retention among low-income mothers and work supports that may improve their employment stability. Author Sunhwa Lee concludes that "employer-provided health insurance, child care, and education are critical supports for mothers' retention and advancement" and recommends policies that encourage more employers to provide benefits to low-wage workers and make affordable child care more accessible.
August 2, 2006
The Pioneer Network's 6th National Conference, Philadelphia, Pennsylvania

August 6, 2006
N4A 31st Annual Conference and Tradeshow, Chicago, IL

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