November 21, 2006
In This Issue:
Portrait of Peg Ankney
"I have always been around someone who was in need of care. Growing up, I had grandparents nearby whose health I saw deteriorate. I'm also the oldest of eight kids, so there was always plenty to do there. In junior high school, I used to go by and visit with some of the [hospital] patients and read to them. When I became older, I realized that this is something I enjoyed, working with the older patients. It just seemed to be a natural thing for me.

Click here for the rest of Peg's story.
Recent Additions
Click here to see more of what's new in the Clearinghouse.
Maine PASA Invites Lawmakers to "Walk a Mile in My Shoes"
Maine PASA (Personal Assistance Services Association), a statewide direct-care and support worker organization, is embarking on a two-month project aimed at educating key long-term care stakeholders about the need for health coverage for direct-care workers. A "Walk a Mile in My Shoes" program, coupled with legislative advocacy training for workers and partnerships with service providers and other supportive stakeholders, will focus on building relationships with legislators, community leaders and policy makers and educating them about the need for affordable health care coverage for direct-care workers. "Our goal is to match up at least 25 workers and legislators from around the state in preparation for the 2007 legislative session," said Maine PASA Executive Director Roy Gedat. "We are building the capacity of the personal assistance workforce to advocate on behalf of their clients and themselves to insure better jobs and better care into the future." For more information, contact Maine PASA at 207-890-0773 or rggedat@exploremaine.com.
Group Coverage and Premium Subsidies in Wisconsin
According to Subsidizing Health Insurance Coverage for the Home Care Workforce in Two Wisconsin Counties: An analysis of options, the key to expanding health care coverage for direct-care workers who work for small agencies is keeping their premiums low, minimizing the administrative burden for their employers, and ensuring that the amount employers must pay for insurance is manageable and will remain stable over time.

The paper looks at a new professional employer organization (PEO) created to make health insurance affordable for home care workers and child care providers in Wisconsin. The PEO reduces costs by providing for group purchasing by small home care agencies and by subsidizing part of the cost of coverage for both workers and employers. Subsidizing Health Insurance Coverage, which was published by the Paraprofessional Healthcare Institute's Health Care for Health Care Workers (HCHCW) initiative, describes the Wisconsin initiative and the potential sources of public funding for subsidizing insurance costs. Authors Tameshia Bridges and Carol Regan also recommend other ways of making health insurance affordable for direct-care workers.
Free Advocacy Materials Available
New campaign materials from HCHCW are now available for use by people working to expand health care coverage for direct-care workers. The materials focus on the "2 in 5" message, which signifies the approximately 2 in 5 direct-care workers nationwide who do not have health insurance. To request free copies of the new HCHCW brochure or fact sheet or the 2 in 5 buttons or stickers, write to info@hchcw.org.
More Information
Click here to read more from and about the HCHCW campaign.
Clearinghouse Helps Consumers Plan for Long-Term Care
Next time someone asks you for basic information about long-term care for themselves or a loved on, you might direct them to the new online clearinghouse developed by the U.S. Department of Health and Human Services. The National Clearinghouse for Long-Term Care Information provides information and options to help people plan for future needs, as well as sections describing what long-term care is and how it is paid for.

A Brief History of DD
Parallels in Time II, a free online resource from the Minnesota Governor's Council on Disabilities, tells the recent history of Americans with developmental disabilities, documenting important societal and legislative milestones from 1950 through 2005. It includes resources, sections on how language has evolved and on the development of appropriate public education for all children and of real jobs in typical work settings, a summary of the proceedings of the Alliance for Full Participation held in September 2005, and more.

Family Caregiving by the Numbers
A state-by-state analysis of the number of family caregivers, hours of caregiving services, and their estimated market value is now available from the Family Caregiver Alliance and National Family Caregivers Association. To view the data, click here or here or here.
Why are wages so low for direct-care workers?

As a society, we don't recognize the value of direct-care work: 74%

The government doesn't pay long-term care employers enough to allow them to pay a living wage: 11%

Employers keep too much of the money they get from the government and private payers: 15%

Employers spend too much on less important things: 0%

Wages aren't too low; they're about right time: 0%
Dear Friend

Direct-care worker conferences are always educational and inspirational, but the Better Jobs Better Care - Pennsylvania conference early this month was one of the best I've ever been to. Planned and presented by the direct-care workers on BJBC-PA's advisory committee, it featured dynamic educational sessions and plenty of R&R for the attendees, whose busy schedules rarely include time to unwind. It also created momentum for the professional association the BJBC-PA worker advisory board has just formed for Pennsylvania's direct-care workers. (For more information, contact Karen Reever at reever@carie.org.) Enthusiasm for the new group ran high, with every conference attendee who hadn't already joined signing up on the spot.

The theme of the conference was the power of storytelling to bring direct-care work to life. Nothing illustrated that point better than the workshop presented by CNA Linda Buehler and home care aide Peg Ankney (pictured below), who began by each describing a "typical" day on the job. Inspired by Linda's and Peg's stories, other direct-care workers in the audience shared their own, moving the rest of us to laughter, tears, and even song. To get a taste of that story sharing session, click on the link in "New in the Clearinghouse" and read what Peg has to say about her work, in a portrait that ran in the worker association's Frontline Care newsletter.

Welcome
Workforce Strongly Affects Client Satisfaction in Home- and Community-Based Care
Researchers Call for Renewed Focus on Reducing Staff Turnover
Assisted Living Study Finds Satisfied Staff Leads to Satisfied Residents
Inadequate Staffing Said to Force Residents Out of Assisted Living
Online Presentation Urges WIBs to Work with Long-Term Care Employers
Maine Paper Recommends Ways of Strengthening the Direct-Care Workforce...
... While Grassroots Group Plans to Pitch In
Demographic Studies Describe DCWs
New Website, Newsletters Help Spread the Word
Workforce Strongly Affects Client Satisfaction in Home- and Community-Based Care
"We found that workforce-related issues are powerful predictors of client satisfaction with services, taking precedence over other domains," conclude the authors of "Workforce Issues and Consumer Satisfaction in Medicaid Personal Assistance Services," a report in the fall 2006 issue of Health Care Financing Review.

Authors Wayne L. Anderson, Joshua M. Wiener, and Galina Khatutsky found a particularly strong relationship between consumer satisfaction and recruitment, or the ability to replace a worker when needed or deal with unscheduled absences. Problems with retention - or having a number of different personal assistance workers over time - did not affect satisfaction as much. "This finding implies," they conjecture, "that when you count on someone else to meet your personal assistance needs, having services performed by any number of different workers is better than having no services at all."

Consumers felt more satisfied if they believed that their workers were well trained and competent. "In this study," the authors write, "having well-trained workers was valued as much as having no recruitment problems." Mistreatment by workers was not much of a factor in consumer satisfaction, with only 5 percent of the respondents reporting that they had ever been mistreated and most of those saying the incidents happened infrequently.

Strengthening the workforce by "[m]aking it easier to find replacement workers, having workers show up on time, reducing worker turnover, increasing worker training, and insisting that workers treat consumers with respect and not mistreat them," the authors conclude, would significantly improve consumer satisfaction with home and community-based services.
Researchers Call for Renewed Focus on Reducing Staff Turnover
Finding that staff turnover negatively impacts staffing levels in nursing homes, "Effect of Staff Turnover on Staffing: A closer look at registered nurses, licensed vocational nurses, and certified nursing assistants" argues that more research and policy needs to be devoted to reducing turnover, not just implementing staffing level requirements. "Because public policy has yet to achieve adequate staffing levels and lower turnover rates," argues the article, "it is important to explore methods other than staffing standards to address the question."

The traditional assumption has been that low staffing levels result in an overburdened staff and poor quality, which in turn lead to increased staff turnover and more vacancies, but the authors assume that "staff turnover affects staffing levels rather than only the reverse."

The article, published in the October 2006 issue of The Gerontologist, looks at causes for turnover among both nurses and certified nursing assistants (CNAs) and finds that a significant relationship exists between CNA wages and turnover rates.
Assisted Living Study Finds Satisfied Staff Leads to Satisfied Residents
A study published in the October 2006 issue of The Gerontologist found that assisted living residents are significantly more satisfied with their care in facilities where staff are more satisfied with their jobs and have more positive views of the organizational culture, such as teamwork and participatory decision-making.

Based on a sample of 335 residents and 298 staff members, "Linking Resident Satisfaction to Staff Perceptions of the Work Environment in Assisted Living: A Multilevel Analysis" found no relationship between resident satisfaction and the level of staff organizational commitment.

"The study findings have practical implications for administrators and policy makers who are interested in increasing resident satisfaction with assisted living," concludes author Elzbieta Sikorska-Simmons. "Because resident satisfaction is related to staff perceptions of the work environment, efforts to increase resident satisfaction should also focus on improving the quality of the work environment for staff."
Inadequate Staffing Said to Force Residents Out of Assisted Living
A recent article in the Journal of Gerontological Nursing argues that inadequate staffing and training force many residents to leave assisted living facilities for more costly nursing homes, where there is less independence.

Assisted living facilities, currently serving approximately 1 million older disabled persons, is the most rapidly expanding type or residential care setting for older people needing long-term care services. Noting that one third of assisted living residents are discharged annually to nursing homes or hospitals, "Providing Quality Care in Assisted Living Facilities: Recommendations for Enhanced Staffing and Training" argues that relocating people to nursing homes because services are not available in assisted living facilities is inconsistent with the principle of aging in place.

The article looks at staffing across different types and sizes of assisted living facilities, as well as regulations governing the training of their direct-care workers. Only 19 states specify a minimum number of hours. On average, assisted living facilities provide their employees with 19 hours of training a year.

Authors Meridean L. Maas and Kathleen C. Buckwalter provide their own algorithms for determining how many personal care assistants and nurses are needed in assisted living based on the number of residents and their level of need.
Online Presentation Urges WIBs to Work with Long-Term Care Employers
A web-based seminar aimed at helping members of the workforce development community understand why focusing on the long-term care workforce will benefit both the workforce system and long-term care employers is now available online.

Conducted on October 23 and uploaded the following day, the webinar featured Scott Sheely and Deb Miller, workforce system directors who have launched successful long-term care partnerships; Catherine Wisnoski-Broyles of Sun Healthcare Group; and Dorie Seavey of the Paraprofessional Healthcare Institute (pictured below), the author of an issue brief on how workforce investment boards and long-term care employers can work together to strengthen the direct-care workforce.

In her introduction, moderator Gina King of the U.S. Department of Labor Employment and Training Administration explains why DOL ETA is supporting greater involvement of the workforce investment system with long-term care. Roughly 150 workforce development specialists from around the country participated, most with ties to local or state workforce investment boards (WIBs).

To listen to the webinar, go to www.workforce3one.org and click on Workforce Investment System under Communities. Then click on Building a 21st Century Long-Term Care Workforce under Getting Your Skills in Gear. Free registration required.
Online Presentation Urges WIBs to Work with Long-Term Care Employers
Maine Paper Recommends Ways of Strengthening the Direct-Care Workforce...
A paper from the University of New England's White Paper series warns of a looming shortage of health care workers and recommends seven things that can be done to strengthen the caregiving workforce.

Solutions for Maine Health Careers Recruitment & Retention: A visionary approach describes the demographic trends leading to a workforce crisis and recommends the following to stave it off:

  • Centralize access to health professions information
  • Increase efforts to recruit youth into health careers
  • Increase efforts to recruit non-traditional populations to health care
  • Broaden access to health careers education funding for individuals
  • Encourage strategic policy changes
  • Work to increase federal and foundation support for health care professions education, recruitment and retention by using existing resources.
  • Enlist and proactively work with and through various media to develop an engaging, informative, and realistic understanding of health and health care professions, particularly for youth.
  • ... While Grassroots Group Plans to Pitch In
    A grassroots community organization in central Maine voted unanimously at a recent meeting to help alleviate the growing shortage of qualified workers by supporting both caregivers and consumers through "education, awareness, and cooperative efforts" and by working to improve care by providing direct-care workers with better compensation and more respect.

    According to "A Crisis of Caring," a report published in the November 6 Kennebec Journal, the Kennebec Valley Organization is a collection of religious congregations, local labor unions, and community groups that was founded last year. The group has held roundtable discussions with "more than 100 people who have been affected by the direct-care crisis," including consumers, their family members, and direct-care workers.

    Lisa Pohlmann, associate director of the Maine Center for Economic Policy and the meeting's keynote speaker, thanked the group, saying: "KVO really seems to us to be the first grassroots effort ... to take on this issue."
    Demographic Studies Describe DCWs
    Two new reports from the Center for Health Workforce Studies at the University of Albany's School of Public Health include basic data describing direct-care workers. The United States Health Workforce Profile lists the number of home health aides and nursing aides, orderlies and attendants by state as of 2004. The information about direct-care workers can be found on pages 117, 118, 150, and 151.

    The Impact of the Aging Population on the Health Workforce in the United States: Summary of Key Findings reports on the number and distribution across settings of nursing assistants and home health aides nationwide as of 2000. It also provides some demographic data on nursing assistants.
    New Website, Newsletters Help Spread the Word
    A new web page for the Maine Direct Care Worker Coalition links to all its members and to papers and other resources for those interested in improving working conditions for the state's direct-care workforce. The coalition's mission is "to promote policy and practices that respect and value direct care workers in order to sustain quality direct care in Maine."

    A free quarterly newsletter from the Centers for Medicare and Medicaid Services (CMS)'s Direct Service Workforce Resource Center provides resources and information for state Medicaid staff and others working to address the growing shortage of direct-care workers in home- and community-based services. The first issue includes information about how to apply for the intensive technical assistance available to up to five state Medicaid agencies to help them develop or implement ways of strengthening the home- and community-based workforce supporting people with disabilities. Click here to subscribe, or to read the first issue.

    Connections@CDS, a free quarterly newsletter from the College of Direct Support, will carry news of the CDS and its partners and staff. Click here to read the first issue.
    November 30- December 1, 2006
    2006 CEAL Quality Summit: Assisted Living: The Next Generation Opportunities and Challenges, Arlington, VT

    December 15, 2006
    Massachusetts Day in Iowa...Getting Serious About Health Care Reform in Iowa, Des Moines, IA
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